Carer Wellbeing and Support
Caring for someone is important. Peace of Mind Foundation are here to support you, too.
When someone you love is diagnosed with a brain tumour, life can change overnight.
You may find yourself managing appointments, providing emotional support, helping with daily tasks and making difficult decisions, all while trying to process your own thoughts and emotions.
It's common for carers to focus on the needs of their loved one, but your wellbeing matters too.
At Peace of Mind Foundation, we are here to support carers through every stage from diagnosis to bereavement.
Common Feelings Experienced by Carers
There is no right or wrong way to feel.
You may experience:
Shock following the diagnosis
Anxiety about the future
Emotional exhaustion
Guilt when taking time for yourself
Frustration or helplessness
Loneliness and isolation
Grief for the life you expected
Fear of what lies ahead
Many carers experience several of these emotions at once.
You are not alone.
Recognising the Signs of Carer Burnout
Carers often put their own needs last and burnout can creep up when least expected.
Some signs that you may see in yourself or your loved one that indicate more support is needed
Constant fatigue
Difficulty sleeping
Feeling overwhelmed
Increased anxiety, low mood, frustration or anger
Withdrawing from family and friends
Difficulty concentrating
Feeling like you have nothing left to give
Seeking support early can make a significant difference.
Small Ways to Care for Yourself
Looking after yourself doesn't have to mean taking a weekend away or finding hours of free time.
Small steps can help:
Accept offers of help.
Take regular breaks when possible.
Stay connected with people in your life who matter.
Prioritise sleep and nutrition.
Continue activities that bring you enjoyment when able. There can be guilt associated with this, but this is an important part of keeping you feeling well.
Speak openly about how you're feeling.
Seek additional support if needed by speaking to us at Peace of Mind Foundation.
Even a few minutes each day focused on your own wellbeing can make a difference.
Accepting Help is Huge
One of the hardest things for many carers is accepting support.
Friends and family often want to help but don't know what is needed. Perhaps a friend or family member can help assign others to help support with these tasks below. This not only gives others a sense of purpose but also helps them to feel less powerless.
Consider asking for support with:
Meals
School pick-ups
Transport
Grocery shopping
Housework
Gardening
Sitting with your loved one while you take a break
You do not have to carry everything on your own.
How How Peace of Mind Foundation can help
Need practical or financial support?
Your Advocate or Navigator is here for your individual needs. National Advocacy Service
Grants and financial assistance programs – your advocate will be able to help you access these to ease the financial burden.
Financial Support
Before you leave this page
Ask yourself:
When was the last time I had a break?
Who can I ask for help?
How am I really feeling today?
What support do I need right now?
If you're struggling, please reach out.