Toolkit

Emotional Wellbeing

Emotional support after a brain tumour diagnosis

A brain tumour diagnosis can change life in ways you never expected.

Alongside medical appointments, treatment decisions and changes to daily life, you may be experiencing a range of emotions that can feel difficult to understand or manage. There is no “right” way to respond to a diagnosis, everyone’s experience is different.

At Peace of Mind Foundation, we are here to support you with practical help, emotional care and connection throughout every stage, from diagnosis, treatment and beyond.

You are not alone.

You are not alone in how you feel

Many people affected by a brain tumour experience a mix of emotions, sometimes all at once.

You may feel:

  • Shock or disbelief after your diagnosis 

  • Fear or anxiety about what the future holds 

  • Overwhelm from appointments, treatment decisions and changes to everyday life 

  • Sadness or grief for the life you expected to have 

  • Frustration about changes to your abilities, independence or plans 

  • Anger, uncertainty or a sense of losing control 

  • Guilt about how your diagnosis is affecting your family and loved ones 

  • Loneliness, even when surrounded by people who care 

Some days may feel manageable, while others may feel much harder. Whatever you are feeling, your response is valid.

Living with uncertainty

You may find yourself worrying about:

  • Treatment and side effects

  • Changes to your health or abilities

  • Returning to work or everyday activities

  • Relationships and family responsibilities

  • Financial pressures

  • What the future may look like

It is normal to have questions and concerns. Having the right support around you can help you feel more informed, prepared and less alone.

Looking after your emotional wellbeing

A brain tumour diagnosis can bring many unknowns.

When you are dealing with a brain tumour, it can be easy to focus only on appointments, treatment and getting through each day. Looking after your emotional wellbeing is just as important.

Small steps can help:

  • Talk openly about how you are feeling with someone you trust 

  • Accept support from family, friends or your healthcare team 

  • Stay connected with people and activities that are meaningful to you 

  • Give yourself permission to have difficult days 

  • Focus on what you can manage today rather than everything at once 

  • Seek professional support if your emotions feel too heavy to carry alone 

Taking care of yourself is not a sign of weakness — it is an important part of living with a brain tumour.

How Peace of Mind Foundation can help you with your Emotional Wellbeing

Need practical or financial support?

Your Advocate or Navigator is here for your individual needs.

Grants and Financial Assistance Programs – your advocate will be able to help you access these