Toolkit
Newly Diagnosed
A brain tumour or brain cancer diagnosis can bring a lot to take in.
This information can help you find your way through the next steps, at your own pace.
Step 1
Connect with a POMF Advocate
Before anything else, an advocate gives you a guide for everything that follows — someone who knows the system and can help you access support, funding and resources.
Step 2
Understand your diagnosis
It's okay not to take everything in straight away. These resources explain brain tumour types and grades in plain language.
It's Okay to Ask — Booklet
Questions to ask your healthcare team about your brain tumour and treatment
Brain Tumour Pathway Form
This brain tumour profile can help in your discussions with your treatment team about your tumour type, grade, location and treatment plan.
Step 3
Learn about your treatment options
Treatment decisions are personal. Understanding what's available helps you ask the right questions of your medical team.
► Current Studies & Trials
Step 4
Manage day-to-day life
Practical and financial challenges often come as a surprise. There is support available — you don't have to navigate these alone.
Step 5
Find your community
Connecting with others who understand makes a real difference. Support groups and events run nationally throughout the year.
TOOLKIT
Resource Library
PDFs, guides and external links for every stage of the journey — from diagnosis through to palliative care.