Toolkit
Resource Library
Whether you're newly diagnosed, supporting a loved one, or navigating later stages of the journey, these resources are here to help.
Understanding Your Diagnosis
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A clear overview of the different types of brain tumours, produced by Brain Tumour Alliance Australia.
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A comprehensive learning hub covering diagnosis, treatment, and what to expect.
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An easy-to-read resource you can bring to appointments to help guide conversations with your medical team.
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This profile form helps you discuss your tumour type, grade, location, and treatment plan with your care team.
Managing Symptoms
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Practical guidance on common symptoms and how to manage them during and after treatment.
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A dedicated resource for understanding and managing fatigue, one of the most common challenges of brain cancer.
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Strategies and information for managing symptoms day-to-day while living with a brain tumour.
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Information on seizures, including what they are, how they happen, and what to do.
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Practical tools to help monitor, record, and manage seizures.
Clinical Trials
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An introduction to what clinical trials are, how they work, and how to explore them as a treatment option.
Day-to-day living
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Resources and guidance for those living beyond a brain tumour diagnosis, including long-term care and wellbeing.
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A collection of online tools to help people affected by brain cancer manage symptoms, track health, and support self-care.
Talking to Your Children
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Guidance for parents on how to have age-appropriate conversations with children about a cancer diagnosis.
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A practical booklet from Cancer Council Australia to help families navigate these difficult conversations.
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Gentle guidance and conversation scripts for talking to children about death and dying.
Palliative & End of Life Care
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Common misconceptions about palliative care — and the truth behind them.
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The national peak body for palliative care, with information, resources, and service directories.
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Information on planning ahead for future care and medical decisions, specific to brain cancer.
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Guidance and support for those in the advanced stages of brain cancer, covering care options and what to expect.
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A compassionate guide to understanding what happens physically at the end of life with a brain tumour.
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Clear information about the physical and emotional process of dying, to help families understand and prepare.
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Practical and emotional support for families watching a loved one in the final stages of cancer.
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Audio conversations on cancer-related topics, including palliative care, from Cancer Council NSW.
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Search tool to locate palliative care providers near you across Australia.
Bereavement
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Support and guidance for helping children process grief after the loss of a parent or family member to cancer.
Support Groups & Services
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Find out about our support groups and how to connect with others who understand what you're going through.
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A list of brain cancer services and resources available through Metro North Health in South East Queensland.
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Cancer Council Qld's peer support programs connect people affected by cancer with trained volunteers and group sessions.
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A face-to-face support group meeting regularly at Toowong. See their Facebook page for upcoming dates.
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A national online Facebook community for people affected by brain tumours.
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Join an online community to share experiences, ask questions, and connect with patients, carers, and health professionals.
Feeling lost or overwhelmed?
You don't have to navigate this alone.
If you're not sure where to begin, our team is here to listen, answer your questions and connect you with the support you need.